• Please save lives, Introduce screening for SCID at birth
    The motivation behind this petition arose from the recent diagnosis of 6-month old baby Juniper with Severe Combined Immunodeficiency (SCID). SCID is a life-threatening genetic condition. Therefore, we are calling on Simon Harris, the Minister for Health, to introduce screening for this disease in the newborn screening programme (heel prick test). Children with this condition have a severely impaired immune system and are particularly vulnerable to severe infection. The treatment for this condition (haematopoietic stem cell transplant-HSCT) has a much higher success rate if diagnosed early and before the affected infant acquires infections. The incidence in Ireland is approximately 1 in 37,000 children (1-2 cases per year); making it more common than half the diseases currently included in the test. In Ireland, the majority of SCID cases are not diagnosed until the affected infant develops symptoms of infection. Survival rates after HSCT in children with SCID diagnosed late and with infection have been reported at approximately 70%. Children diagnosed and treated early (before 3 months of age), before they have acquired any infections, have a much better chance of survival (>90%). A diagnosis of SCID can be made on the heel-prick test using PCR-based technology. Considering the vast difference in survival rates and the impact on children and families, it seems obvious that SCID should be included in the newborn screening programme. Internationally, this screening has already been included, with success, in New Zealand, Canada, Taiwan and every state in the US. Pilot schemes have also started in Israel, Australia, the Netherlands and the UK. Moreover, studies in these countries have also concluded that early diagnosis in the heel prick test and treatment prior to infection is more cost effective to the healthcare system. Diagnosing SCID early is particularly important since the introduction of the live rotavirus vaccine. While this vaccine is safe for healthy children, it can be dangerous for children with SCID. This highlights yet another crucial reason to implement screening for at birth. For Juniper’s parents, her diagnosis of SCID has been devastating and shocking, considering that up to a few weeks ago they believed she was a healthy and thriving baby. Unfortunately, due to the lack of testing for SCID, she spent 3 weeks in hospital, on 3 courses of antibiotics, while deteriorating rapidly before an accurate diagnosis was made. Now they must travel to the UK for life saving treatment, and face a lengthy and difficult journey ahead. Juniper’s parents do not want any other parents to endure what they have had to, when a simple blood test at birth could have prevented Juniper from contracting infection and given her a higher chance at survival. If you are a medical professional please include this in your signature. For more information on SCID please visit https://www.ipia.info/what-is-primary-immunodeficiency/severe-combined-immunodeficiency-scid/
    4,144 of 5,000 Signatures
    Created by Friends and Family
  • Give Identity Rights to Adoptees in Ireland
    Irish adoptees have no automatic right to access our adoption files, birth certificate, health, heritage or history information. A right to identity is a recognised human right and adoptees are denied this right. This affects Irish Adoptees from historic, domestic adoption, along with their children and extended families.
    7,211 of 8,000 Signatures
    Created by Maree Ryan-O'Brien Picture
  • Use Irish Peacekeeping Record in Lebanon to protect Syrians from harassment from Lebanese Army
    Lebanon, along with Turkey and Jordan, has been extraordinary in providing refuge to Syrians fleeing war and persecution in their homeland since 2011. While the numbers and circumstances of how the refugees have been accommodated vary greatly, the willingness of Syria's neighbours to accept proportionately massive numbers of refugees has undoubtedly saved countless thousands of lives. In Lebanon, specifically, with a native population of just 4.4 million, upwards of 1 million Syrians have sought refuge. This, clearly, has created massive challenges and strains on the services and infrastructure of a country which itself is only recovering from years of turmoil and strife but, in general, Syrians have been able to feel relatively safe in Lebanon. Of late however, elements of the Lebanese army have escalated a campaign of intimidation and harassment against Syrians with the putative intention of forcing people to return to Syria. Just last week, on two successive nights, soldiers under the command of Lebanese Army Intelligence Colonel Melhem Hadchiti and 9th Brigade Commander Brigadier General Pierre Abu Assaf carried out raids in around 30 camps around Arsal in freezing temperatures. People were forced out of their tents into the cold with no regard for their welfare or dignity while their tents were ransacked. Many hundreds were detained and suffered torture and abuse. As a country with a long and distinguished military record in Lebanon and the Golan Heights in the form of UN peacekeeping deployments, the Irish Army is uniquely placed to exert its influence with the Lebanese Army. We are urgently but respectfully requesting the Minister for Defence Leo Varadkar to use his influence and good offices with the UN as well as with his counterpart in Lebanon Yaacoub Sarraf to ensure that these unforgivable violations against suffering and defenceless people cease immediately. References: Deutsche Welle: Germany says Syrian deportees could face reprisals: reports https://www.dw.com/en/germany-says-syrian-deportees-could-face-reprisals-reports/a-46367849 Out of Syria: shifting routes and returns: https://www.iss.europa.eu/content/out-syria-shifting-routes-and-returns Union of Relief and Development Associations - Number of Syrian refugees in Lebanon : http://urda.org.lb/en/details.aspx?ID=1426
    34 of 100 Signatures
    Created by Irish Syria Solidarity Movement -
  • Support the Occupied Territories Bill for its next stage in the DAIL on 24/1/19 (Irish Parliament)
    ‘The Control of Economic Activity (Occupied Territories) Bill, 2018’ seeks to ban imports to Ireland from illegal settlements in countries which are illegally occupied, in breach of International Law. This is a chance for Ireland to stand up for the rights of vulnerable people – it is about respecting international law and refusing to support illegal activity and human suffering. Under international law (the Geneva Convention), the transfer by a State of its civilian population into a territory it has militarily occupied is a war crime. This legislation would apply to territories where there is a clear international legal consensus on the status of the occupation. As it stands, only the occupied Palestinian territories have been confirmed as occupied by the International Court of Justice. This Bill does not implement a boycott of Israeli goods, or single out Israel. It only bans the import and sale of goods produced in settlements that are illegal under international law. The European Union’s position is absolutely clear: Israeli settlements in the occupied Palestinian territory are “illegal under international law, constitute an obstacle to peace and threaten to make a two-state solution impossible”. Despite this, EU states, including Ireland, continue to make the settlements financially viable through trade and economic activity. The legal basis of the Bill and its permissibility under EU law are confirmed by several formal legal opinions: Michael Lynn, Senior Counsel in Ireland, Professor James Crawford of the University of Cambridge, Senior Counsel in the UK and one of the most eminent authorities on international law worldwide and former Attorney General Senator Michael McDowell have all confirmed the legality of the Bill. This Bill has cross-party support from all parties in the Dáil and Seanad but the government is refusing to support it. This is why we are calling on Minister for Foreign Affairs Simon Coveney and his party to back this Bill as we want all the people of Israel and Palestine to live in peace and security. We stand in support of international law and for the principles of peace and justice.
    1,234 of 2,000 Signatures
    Created by Gerry O'Sullivan
  • Belmont speed and parking problems
    Because the estate is full of young children that run, skip, scoot, cycle around the bend and throughout the entire Belmont estate every day
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    Created by suzi guiney
  • Provide safe crossing place for school community at Rathgar Junior School
    We would like a safe place for the children, staff and parents to cross the road to the school premises. Ideally, we would like a traffic warden/lollipop man/lady, a zebra crossing, ramps to slow oncoming traffic - especially from the roundabout and a pedestrian lights to help all members of the school community cross the road safely. We would like 'School Ahead' signs put up to warn drivers to excise caution. We would like these located in front of the school where we currently have zig zag lines, as we do not want children to be crossing the road between cars.Currently we have 167 pupils in our Junior School plus 19 children who attend Montessori on our premises. We have 21 members of full time staff and parents who also may cross the road to come to school.
    341 of 400 Signatures
    Created by Brigid Rose Kalisa
  • Make progressive, alternative schools available to all children regardless of financial background
    Educational researchers agree that our current mainstream school system does not align with meeting the needs of children. We can no longer judge children's abilities in standardized testing, which ignores their creativity as well as talents and often makes them feel isolated, stupid and worthless. Especially children with additional needs are not nourished in the long outdated school system. In most European countries progressive schools such as Montessori, Sudbury, Homeschools and Waldorf Schools have long been a welcoming space for children to flourish, to gain self confidence and to become independent and happy citizens. Unfortunately these schools in Ireland depend fully on fundraising and fees alone because they do not receive a single cent from the Irish government. Teachers often partially work for free, because they believe in the significance of these educational establishments, and more importantly in the children's right to self-direct their learning, no matter of their financial background. It is time to allow parents and children to choose how their personalities will develop healthily, without a religious indoctrination, by letting them learn in an alternative non-denominational school. Please add your name to this petition to collectively ask our new Minister for Education, Joe McHugh, to spread the allocated funds for education more fairly by including alternative schools such as Montessori, Sudbury or Steiner, as well as homeschooling in the state funding, so that no child has to pay fees in order to grow there. With good hopes for the future, Carolin, a former teacher
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    Created by Carolin Cordes
  • Get off the fence - RTE policy on climate change
    Climate Change is accepted as an existential threat to the the planet and humanity. It affects us all and underpins every issue we fight for. The recent IPCC Report on 1.5°C is unequivocal: time is running out. Media in general and public service broadcasters in particular have a critical role to play in supporting public understanding of this issue and the transition to a low carbon future. Despite this, broadcasters still often obscure facts in the pursuit of so called "balance". In September 2018 the BBC became the first major broadcaster to implemented clear editorial guidelines to address this. We now call on RTE to issue a clear editorial policy in line with the science, in line with its public service mandate.
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    Created by Lorna Tevnan
  • Reinstate funding to Lifeline Inishowen
    Established in 1996, Lifeline Inishowen provides professional and confidential support to women and children who are experiencing or have experienced domestic abuse: physical, emotional, sexual or financial. The service's volunteers provide support to 54 families per year, on average. HSE funding was withdrawn in 2010. Although Lifeline receive a small sum from TUSLA towards their Child Counselling service, their main source of funding for the past 8 years has been donations through their own fundraising efforts, and their charity shop. Local support has been overwhelming, but is sadly not enough to secure the future of this vital service. Inishowen has a bigger population than Co Leitrim and a larger landmass than Co Louth. The only funded domestic violence support in the entire county of Donegal is located in Letterkenny – a 120km round-trip from Lifeline's Carndonagh base. This is simply impossible to access for Inishowen women and children in controlling and abusive households. Minister Zappone and TUSLA, we demand that the funding for Lifeline Inishowen's running costs is reinstated. The centralisation of domestic abuse services in a big, rural county like Donegal is disastrous for families in Inishowen. Closure of Lifeline will literally put lives at risk. Reinstate the funding to secure the future of these essential services in Inishowen. Lifeline Inishowen Charity nr: 19971
    923 of 1,000 Signatures
    Created by Together Inishowen
  • WE NEED A PEDESTRIAN CROSSING IN KILL CO KILDARE
    The safety and access requirements of all Kill residents both drivers and pedestrian has become treacherous with the increased volume of traffic through the village in recent years. There was a serious accident recently involving a schoolchild trying to cross the street which has brought focus onto the safety issue. There are also issues of access to housing estates and minor roads when there is no natural break in traffic and also no road markings or lights to allow a fair balance in the movement of said traffic. *UPDATE* It is now October 2020 and apparently KCC have been leading us on a not so merry dance, they say that although the funding is available and that a local firm offered to install the crossing... WE ARE NOT GETTING A PEDESTRIAN CROSSING. How can the decision makers sleep at night? KCC are happy to give planning permission for more houses to be built in Kill but are not willing to add the necessary infrastructure for the growing population! A traffic count was conducted during lockdown, showing an unrealistic picture of traffic volumes through the village ... fantastic logic. We as a community will not give up fighting for the safety of our village!
    1,053 of 2,000 Signatures
    Created by Aurley Keenan
  • More Secondary School places needed in Rush, Co. Dublin
    Several Children and parents were let down yesterday when they received their letters from the local Secondary School, over hundred on the waiting list. The situation already looks grim for over hundred families and since Rush and Lusk have been dynamically expanding fears arose that the situation can only get worse in the coming years. Commuting is not a solution. Rush needs more Secondary School places.
    1,238 of 2,000 Signatures
    Created by Katalin Wallner
  • Reinstate funding the INFANT Centre, UCC.
    The Irish Centre for Fetal and Neonatal Translational Research (INFANT) is Ireland’s first dedicated perinatal research Centre. INFANT works to improve health outcomes for mothers and babies by focusing on clinical and health research and innovation in pregnancy, birth and early childhood. This is the only research Centre in Ireland focused on this work. Research focused on mothers and children must be prioritized.
    883 of 1,000 Signatures
    Created by Mary Carty