Abolish Loco Parentis

Under the Loco Parentis rule, parents of disabled children are restricted from leaving their own home while a respite nurse is in the home to provide in-home respite. An adult must remain in the home. This is not respite. Parents who are caring 24/7 for their medically fragile children must be able to recharge, run errands, go to medical appointments, spend time away with their other children, and much more. The siblings of the disabled children must also be able to have the most normal social life outside of the home as possible. For this to happen, parents must be able to leave the home with these siblings during in-home nursing respite hours. This rule is particularly discriminatory against lone parent carers who don't have a partner to be the adult to remain in the home as the Loco Parentis. Of all carers, lone parent carers are typically under the most amount of stress - physically and emotionally - and as such, being able to leave the home, even just once a week for 5 hours, is desperately needed. Ultimately, the best care possible for the disabled child is what is at risk if the parent carer is unable to maintain their own physical and emotional well-being. The other children in the family, and family unit as a whole, are also at risk of harmful, irreparable dysfunction if essentially trapped in their home due to such an inhumane, unjust, policy as is Loco Parentis. This rule, implemented by the HSE, is clearly a violation of human rights and the rights of children.